There is a general lack of knowledge about kidneys among the general population, making a diagnosis of kidney disease particularly stressful. This article discusses how a patient self-management programme was developed within the East London Community Kidney Service, and evaluate the early findings from the feedback that has been gathered.

Nicola Thomas - Professor of Kidney Care, School of Health and Social Care, London South Bank University

Helen Rainey - Clinical Nurse Specialist, Chronic Kidney Disease, Barts Health NHS Trust